Saturday night. I'm laid up with my feet on fire at home, chilling and wardrobing for this Friday night. I text mom when I settle on what I'll be borrowing from her for the night.
Me: Can I borrow the Chopard, Van Cleef earrings and multicolored bangles for Fri? I'm done with the Louboutins. [Lest I get too greedy.]
Mom: Sure! If u r not wearing Louboutins then I will. [The Greens are arriving with the McNetts Friday afternoon.]
Two hours later a picture text from their good friend Nancy P. comes in.
Nancy P.: Subject: Your Crazy Father
Photo: 
Me: Oh Jesus, LMAO where r u?
Nancy: what is LMAO? bar mitzvah
Me: Lol. Can't blv Andrew hasn't taught you that one
Well, then the photos started coming fast and furious.
Subject: Blogworthy
Photos:
I believe this is Gary's Dishalicious debut. Mazel mazel!
And I just *know* what's going on on the other end of that phone, for I've witnessed their shenanigans for 34 years now. Love it. Can't even imagine having uncool parents and family friends. Party like rockstars people no matter your age; you've only got so much time.
Monday, December 07, 2009
My Crazy Father
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Saturday, December 05, 2009
The bottom of my feet hurt from the Tykerb while: doing anything barefoot. Sleeping. Waking—that's the worst. Wearing flip flops. There is like a burn pattern on the soles of my tootsies from the ball down the outside and into the heel.
The bottom of my feet do not hurt while: wearing Louboutins, doing yoga and in sneakers working out. Silver lining of this Chemo side effect? You guessed it; excuse to shoe shop and more incentive to go to the gym. (As if the inflated flotation devices that are now my arms weren't enough motivation.) Man, I would be in serious, serious bankruptcy-level trouble if I still lived within walking distance of Bergdorf while having Cancer.
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Friday, December 04, 2009
I was so beyond touched, buoyed and amazed by the eloquence and insight of a long-time reader's comment today that I'm posting it. Obviously well-written and humorous, this commenter verbalized what I've been struggling with about my memoir and marketing it to editors. How to say that it's not just a "Cancer Memoir?" As if I'd even read a Cancer memoir. They're depressing, no? This comment is the best Cancerversary present that I could ask for, so a huge thank you, Anon.
"You know, I've read your blog for much longer than 2 years and not commented, but tonight I feel oddly compelled (gin and tonic, be damned!).
And I'm going to comment on "wasting two years of your life on cancer."
Yes, that.
Ok, here's the thing: as an admittedly blessed 29 year-old, I've never had to deal with breast cancer on a really gritty, in-your-face personal level. It's not going to sound nice, but the chances that I would opt to read a blog centered around BC are slim. It's just not something most "healthy" folks are going to seek out.
But I found your blog through Gawker (I know, I know) some time ago. I was drawn into your voice on the blog - funny, current and sometimes even hilariously scathing. I have read you loyally since that time.
And it just so happens that someone I've never met but found endlessly amusing and accessible happened to be diagnosed with BC. It even started as something in the background - this was certainly not an activist blog. I mean, I came for Prada and ended up with Tykerb. Steph, I know what Tykerb is now. I mean, that's something.
And that's my point. For two years I've been reading about your experience. And I've been learning. And if I'm really lucky I may never need that information - I mean, I pray to whomever/whatever that nipple tats never become a reality to me or loved ones. But if luck has nothing to do with it and statistics come into play, I'm going to need to know about this beast. And now I do.
And that's pretty powerful. Because there's no way I'm the only person that has been affected by your writing.
I know you want to make it as a novelist, but as far as I'm concerned, you made it as a true writer a long time ago. And these two years are probably the most painful and draining of your life, but I can't help but think they've not been wasted."
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Thursday, December 03, 2009
Yowzers
I can't believe it's been so long. I have good excuses though.
As most of you know I was supposed to move from South Beach today. Well, after a major internal mental struggle, I realized that I'm not totally ready to leave permanently.
So I'm keeping my apartment, with the intention of spending about a week per month here. I have no concrete plans about New York yet; I've learned not to plan too far ahead when Cancer is your life partner.
I will be in the City for a week a month as well. That's about all I can plan right now. Basically, it's more fiscally feasible to keep my apartment here and come here for checkups than at Sloan. I'd be paying $800+ for Norton visits, when they're covered here.
On that note, I had my blood work done Monday. Schwartz is content with the numbers and when I talked to the nurse today, she said that a 15-point drop from October to December is "making good progress."
The fucking side-effects though. They're bizarre. The Xeloda has me retaining water in my arms of all places, so you can imagine how thrilled I am with that since I never liked my arms anyway. Chad has me on Alfalfa capsules, nature's diuretic apptly. The most troubling/annoying/painful thing I've got going on right now—aside from wanting to stick pins in my arms to release the fluid—is pain and irritation on the soles of my feet. This is from the Tykerb. So I awake in the morning with a pseudo burning feeling on my soles to the point where I can't even put on my flip flops. Thank God I've got travertine floors, which cool the tootsies. So now I'm in the habit of slathering Regenecare (sp) to Lidocaine the feet in socks. Not being able to wear flip flops in Miami = not being able to wear black boots in New York.
So my arms are fat. My clavicle area is completely swollen, which sucks because there's nothing I like more than seeing my clavicle bone protrude in that too-thin way. Yes, I'm psycho about my weight, thus it's starvation central until my Heeb reading.
And I'm getting very excited about that. A lot of people are showing, including my amaaaazing onco Schwartz and some of the other members of my team. That being said, Schwartz will avail himself for Breast Cancer questions for you ladies. Loooove him. And of course the Shrink, Acupuncturist, Yogis, parents, family friends and probably a bunch of weirdos who are turned on by yarmulke covered tatas. You can pick up the fliers locally at Base and Books & Books on Lincoln Road.
Finally, tomorrow is the TWO YEAR anniversary of my initial Breast Cancer diagnosis. Last year I flitted off to Chicago to celebrate. This year though I want to go to the Sante D'Orazio and Francesco Clemente Basel bash, most likely I will be too emotional. Last year, I thought I was in remission. This year, not so much. Maybe retail therapy. I don't know. Alls I do know is that I never imagined I'd waste two years of my life on Cancer. So not cool.
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Friday, November 27, 2009
Ciao, Cancer Chatter
I'm thinking this will be my last Cancer post till I move. The movers come one week from yesterday and I haven't packed a single thing. If I had a TV in my closet that would help; my closet, as you can imagine is one staggeringly intimidating behemoth.
Yes, I'm leaving Miami for good, but I'll have to be back once a month for check-ups and tune-ups. I've got Melnick, Schwartz, Chad, Rosenbaum, Mesko, my Yogis and my friends to come back to. In the meantime, I'll be on sabbatical based in Jax but doing Miami, Atlanta, Savannah and New York in December alone. And the last week in January I will crash with Brother and Savvy in their Chelsea pad while I skitter around uptown trying to find a suitable domicile for Wally and me.
Okay, following is part III of my transcript from my last checkup with Schwartz. Hope everyone had something to be thankful for yesterday. Moreover, I hope everyone gets some fabulous deals today on Black Friday.
Int., Schwartz's office for one-month on meds checkup:
Mom asks about dissecting the large node to determine if we are on the right treatment protocol. If at some point that might provide more information. Helloooo—TMFI already.
Here's the really super part:
"So long-term treatment protocol for me, if this is working . . . Am I on these drugs indefinitely?" "Yes." "For the rest of my life?" "Yes."
(And people wonder why I cannot envision myself having a normal future.)
"Unless something replaces these treatments."
"When it recurs, well . . . Will I ever technically be in remission again? Could I be?"
"Yeah, you could be in remission but that doesn't mean your 'cured.'"
"Even if I'm in remission I would take the pills still . . . What's the big mark? Isn't there like a five-year [Cancer-free] mark?" "In Breast Cancer, no. The numbers are very misleading." Translation: We're never safe. Five years doesn't mean shit.
I have to tell you guys that out of all my myriad Cancer friends, most of whom are well under 40, all but two have recurred.
(Exasperated.) "Every one of my young friends except for two—it's already come back. All under 35."
"Our biggest issue hasn't been related to Obama. Our biggest issue is access. There's just a lot of people who can't see us. If you don't have insurance you can't be treated. the drugs are too expensive. [Each chemotherapy session in a hospital runs up to 10k I believe.] Medicare is fine. Medicare with Medicaid is fine. Just Medicaid, which is basically for young people—"
"I didn't know young people had Medicaid."
"Medicaid is basically for young people without money. They [Medicaid] don't pay for this," he gestures around the office and at me, "the doctors get paid, but the drugs don't get paid for. So you basically can't treat somebody who doesn't have insurance."
So they die. Hence, in my not very humble opinion, the soaring Cancer death rates. As the poor get poorer, the death tolls climb.
"Lemme ask you, cause a lot of my readers—oh, I have a book out, I forgot to bring you—the whole mammogram under 40 debate. Not even that, but are mammograms like, does insurance not cover mammograms for women under 40? Why do some people I know not want to get them because of insurance?"
"It's not really an insurance issue. It's more the guidelines, the 40 issue. Different groups have different guidelines. Some groups even say start at 50."
This transcript is a month before the media pounced on the screening at 50 mammo story.
"Did you see Norton on World News smacking down that [fucking asshole] head of the ACS who came out against early screening?"
"No, I read the story in the Times though."
I love having a doctor who reads the Times instead of watching Disney [ABC] News, even though I have my issues with the Times as well.
"I know [Dr.] Laura Esserman though. A breast surgeon in San Francisco whose paper has brought out all the [age issues] to re-examine the role of mammograms."
"Is she against early screening?"
Emphatically, "No. She's not against early detection. She's actually a really great doctor, but the data she collected didn't necessarily show the benefits of early detection—"
Mom: "Mmmmmh."
"And then it was misinterpreted. It basically shows that there are groups of women that detecting the tumor early, they're not cured because of that."
"Norton said in the Times story something like 24 percent of women who do go through early detection—it saves their lives or whatever. But this is what I don't get: What is the harm in having a mammogram?"
"The 'harm,' is this. You can end up having biopsies for a lot of benign diseases. That's one 'harm'—that's an inconvenience [not harmful]. So that's the minor harm is the inconvenience and the anxiety of repeated biopsies. The bigger concern, which is very difficult to prove, is there are probably some [women with] breast cancers who are better off never being diagnosed. That the on takes care of on its own."
A la prostate Cancer. When Prostate Ca shows up in old men, doctors often advise against treating it. I think something like 80 percent of men get Prostate Ca at some point in their lives, but only a sliver die from it.
"Really? That's what they're finding out now."
"It's not surprising. It's the same case with prostate. There are tumors that in effect will never affect—"
"But NOT high-grade, infiltrating Breast Ca like I [and my friends] have?"
"Exactly. But you can make an argument not to do mammograms on women over 75."
"But young people like me—"
"It's a different story. This doesn't apply to you, but it may apply to your readership."
Lol, I doubt many of you are over 75.
"My best friend is a radiology resident and he says what they're taught is 40. Is it 35 only for high-risk people?"
"Well . . ."
"You would say 35?"
"What I tell people [note how he said people, not patients] when they ask is for women to get a baseline mammogram in their 30s and then again [if everything is Kosher with the baseline] again at 40. Unless they have a family history."
"Which most people I know do. Mainly cause I hang with all Jews."
(If you girls have a family history, are in your 30s and haven't had a mammogram yet, well, you fucking piss me off if you want to know the truth. I've badgered several readers into getting mammograms. Nearly 10 of you now. Not one of them has found it 'harmful' in any way.)
Back to my case.
Mom: "So, basically it's kind of like treating a chronic disease."
"Exactly. And it's going to get more like that. [Thanks to all the cutting-edge treatments, including the PARP inhibitors. Google it if you are BRCA+ or think you may be.]
"What I tell my friends is that it's like the HIV cocktail you're on to prevent full-blown AIDS."
"It's going to get more like that. We're hoping it's not that far off."
"Well the Tykerb is new . . ." Jeez, what a cliched photo on that Web site.
"And there's a HER II vaccine. A lot is happening."
Indeed it is. Jesus I have so much to do and I'm still sitting in bed typing this. Ta. Fuck, I hate moving.
This is another one of Laura's awesome photos. Un-retouched (sorry L.) but I wanted to show you cause you can see all my scars. Yep, that's all of them. The only thing beneath the Yarmulkes are two perfect man-made mounts of mock mammaries.

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Tuesday, November 24, 2009
Oh, Jew it
I'm too impatient, but I'm also well-aware of the need for advance notice when social planning is concerned. Last-minute notice is a HUGE pet peeve of mine. This is one of Laura's fantastic photos—despite the subject–that we did for an author Q & A Heeb's running on it's Web site, but it's also the fliers I've made up.
Anyway, the reaction to this shot has been like, 'whoah, it's racy.' Um, what's the diff between this and wearing a bikini top? And you can see my scars. That's the fucking point. I don't even think of myself as a woman from the clavicle down, so the fact that some guys find this hot is a.) weird and b.) the last thing I care about right now. What I care about is filling seats. If you're a good friend in the area and don't come, well, you may end up with a horse head on your pillow.
I'm too impatient, but I'm also well-aware of the need for advance notice when social planning is concerned. This is one of Laura's photos that we did for an author Q & A Heeb's running on it's Web site, but it's also the fliers I've made up. Anyway, the reaction to this shot has been like, 'whoah, it's racy.' Um, what's the diff between this and wearing a bikini top? And you can see my scars. That's the fucking point. I don't even think of myself as a woman from the clavicle down, so the fact that some guys find this hot is a.) weird and b.) the last thing I care about right now. What I care about is filling seats. If you're a good friend in the area and don't come, well, you may end up with a horse head on your pillow.
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Friday, November 20, 2009
I Heart Schwartzes
That's just for lack of a better title. Following is the second half of my checkup with Schwartz. In this portion of our story, I learn several fun things including: I'm married to Breast Cancer and divorce is not an option. My only option is to widow the BC.
And a word about my move, since none of my friends seem to know what the hell my plans are and seem to be in denial that I'm leaving. I'm moving out of my SoBe pad the 2nd or 3rd of Dec. Head back to Jax for a week, then travel back down here for the Books & Books reading Dec. 11. Then back to Jax. Dec 19 I head up to the ATL for four nights, Savannah for a night, back to Jax then NYC for the holidays. Back to Jax for New Years, where Dana will be in town with all the rugrats and I'll finally get to meet Jaylen. Then the last week in January I'm back in the city for a whole week. So, yes I'm moving—around, with Jax. being my home base for the next couple months.
Okay, Part II, interview with Dr. Michael Schwartz, my lovely and talented onco. Before I go on, I have to say that Schwartz is incredibly soft spoken to the point where I had to hold the Handycam up to my ear to transcribe.
Me: "So this is the treatment protocol [for me] . . . oral chemo. Not infusions? Okay, I'm curious about the people who are always in chemo. [Like indefinitely, for years]. Does that mean they . . . "
Schwartz: "I'd imagine that the person would have that from the original diagnosis."
Mom: "So at this point in time with how she's doing in a short three weeks it's the way it should be?"
"Yeah—"
"But he hasn't gotten the workup back—"
Schwartz: "But you're tolerating the meds. Not every body does."
(Me, in a whatever tone.) "That's fine."
"That's the first thing—tolerating the meds. Second now we have to see whether it's going to work. It [the biggest node] does feel less bulky. Subjectively, I feel like we're moving in the right direction."
Mom: "So the bloodwork we're waiting on is the [tumor marker] and you'll get those in?"
"A couple days."
Here the light goes on and I realize that the CA 15-3 isn't in the books for today. Ruh-roh—that's the test I've been waiting for to put my mind at ease. I'd assumed the tumor markers should've gone down over a month.
"Ohhhhhhhh. You're not getting that today?" Apparently, the main thing that day was the CBC panel, which indicated that I was tolerating the meds—not everbody does, you know, natch, I'm a Cancer superstar again. Woo-fuckin'-hoo.
"Now, I'm not too concerned with today's 15-3." Uh, I was. "It's the next one [Dec. 1 check-up]. [Tumor markers] Often goe up when you start the treatment."
"Oh shit. I was thinking the [15-3] bloodwork would be back today." Sigh.
"At the start it's common for the numbers to go up . . . It's called a tumor flair."
"Omigod. I totally thought I was going to have the bloodwork today."
"It's feeling less bulky."
"For sure? So that's basically some physical proof."
And next the fun part, which in my Xanemory I hadn't necessarily paid attention.
Meanwhile I'm heading to the Sawgrass Outlets to find a frock for my Heeb reading.
I'm feeling a little overwhelmed in a good way—Books & Books is probably the largest indy bookshop in Florida. Uh, no biggie! And it's Hanukkah, so hopefully I'll be able to move some books. I'm wondering if other writers think like me—from PR to marketing to thinking in terms of 'moving books.' It seems like we should have other people to do this stuff for us. Like an agent perhaps that I haven't even tried to get. Haven't even emailed the ones I know.
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Tuesday, November 17, 2009
Fuck 50; Here's the Truth Part I
Along with Louboutin and Hermes, I had the Sony Handycam in tow for my Nov 5 checkup with Schwartz.
I wanted the detailed DL on my case, and on bigger points as well, including the 40 vs 35 debate. Why am I not up in arms about the 50 year old thing? Well, here's the thing people: I'm a journalist. I know how the sausages are made. Briefly, here's how it goes. A leading publication/news show produces this story. It gets a HUGE reaction. The other networks/publications scramble to keep up with the Joneses. "Shit, the editor/producer says, NBC's share was huge last night. Reporter X write this story up NOW. Before the other ones get it."
Think about the saturation of ridiculous stories of late: "Balloon Boy," "Octomom," Jon and Kate and all this other 'news' that's really no news at all. It's the same thing with this. Studies and stories like this spiral out of control and cause mass fear because the media picks up the story, then the Cancer orgs are forced to spend more money on PR to take a stand against these ridiculous stories. Anyway, what I'm saying is just chill out a little. As this interview proves, the 50 thing is nothing new!! I hope at least one of you will get a mammogram or a BRCA test after this post. I really, truly do. xxoo
Int. Schwartz’s office, Mom and I bickering over who will hold the camera. I win—she gets to hold it. Meaning the mic is really far away from Schwartz who is very soft spoken.
“You’re waiting on the bloodwork, right?”
“Nope,” Schwartz says, “It’s done.”
Mom: “Oh, goooood!”
“We’re not worried that the bloodwork will be thrown off by this.”
He starts talking about the side-effects, and how that’s what he was concerned about after being on the meds for a month. Then I begin to realize we’re not on the same page.
“So how much did my blood levels (sic) improve?”
"Oh, you’re talking about your marker? [CA 15-3 tumor marker bloodwork]. No, I don’t have that yet.”
“Oh, that’s what I was talking about.”
“No what I have now is the CBC . . . Have you felt any new ones? [nodes].”
“Okay, it’s just hard for me you know, I’m not a doctor; I don’t know what everything is supposed to feel like.”
Mom keeps whispering, “That’s good. That’s good.” I have no idea ‘what’s good’ or why she’s whispering. Maybe that's her mantra. I like mine from a Wiccan High Preistess better.
Schwartz brings a tape measure out.
“Oooh! So I can just measure this with my own tape measure?" Hello psycho obsessive control freak! Welcome back!
Mom: “Oh no, don’t tell her that.” Lol.
In the meantime I have to say that my boobs look damn good on camera.
“Okay so regarding me and the self exams. Like, what am I looking for?”
“I have to tell you that you’re going to be here every three or four weeks for a blood count check and to adjust the dose. So it’s [the progress/success of meds] probably going to be appreciated by me before you. The only thing that could change that is if you see a new spot.”
I was confused about how the same form of Breast Ca could return when I have no tissue in my boobies. I asked if it were possible that they didn’t gut me enough.
So, here’s a key bit of info, I think: “You recurred in the internal mammary nodes. And that’s an area they don’t remove.” So we have to worry about internal nodes like those under the sternum. Which we cannot physically feel. Cancer is the ultimate lurker.
“So, the course of treatment for me if things are going well, is just these pills indefinitely?”
“What I’d like to do, if things are going well after a certain amount of months is drop the Xeloda and continue with the Tykerb . . .”
“Is that safe though?”
“Yes, well we don’t have to make the decision now; see the Xeloda has cumulative side-effects. . .”
Blah, blah, skin side-effects, which include, as I learned last week, sensitive, painful soles of your feet. Yum. Tolerable though. Who the hellcan’t tolerate a little foot pain? Oh, wait, non-New Yorkers who don’t walk miles in Manolos? Hey dad—looks like my “you’re going to regret wearing all those dumb Manolos and Choos when you’re older and have bunions” stilettos may pay off!
Assuming the disease is under control, I may be able to drop the chemo and stick with the Tykerb, aka, Super Herceptin.
“Okay, continue on with my protocol.”
He says he can continue to up the Xeloda dosage until I can’t deal with the side-effects. Shit, bring it on—he knows I must have everything! Oh, wait, Wally—we’re not in Neiman’s anymore? Wants me to come in every three or four weeks until we can determine that everything is ‘working.’
Here’s where I make a yucky face and actually use air quotes: “So ‘working’ means shrinking the tumors or keeping them at bay?”
Keep in mind that I’m in full makeup, hair and jewelry. (Including my Talismans, the most prominent of which is a thick red string around my neck Brother brought me from India. It looks pretty ridiculous against my naked body.) So I’m sitting on his doctah chair with my robe open exposing the girls and my fat-rolls.
“Either is possible, I’d rather it shrink them.”
“Shrink them into non-existence?”
Schwartz: “So, ‘non-existence’ means a complete remission. No evidence of Cancer.”
“Okay, lemme ask you: Was I ever in remission?”
“You were 'technically' in remission but in reality you weren’t.”
“'Technically' because I was on chemo.”
“Right, and you had no evidence of Cancer. [Gauged by the frequent CA 15-3 bloodwork].”
“So I was in remission from Feb 2008 [date of mastectomy] to whenever this came back.” A year and a half. Less because I was on the Herceptin after I finished chemo.
“So your opinion—if I remember last time correctly cause I was on so many Xanax—is that the Herceptin was keeping this shit down. Do you think there was any stuff [Cancer cells] still in there or it just came back as soon as soon as the Herceptin left my system?”
“I hope it came back after it left your system.”
“I’m a fairly unusual case because of everything I did and how fast it came back right? Don't you think I should be studied?” I ask deadpan, then smile and get my first laugh out of him for the day.
(Laughing) “I mean, I don’t know how you go about that.”
“Well if my case is unusual enough to where the point that . . . I don’t know, like, ‘why me,’ not like, ‘Why Me God? but—"
“No I understand.”
Hey BRCA ladies who are debating on chopping them off—listen up!
“I did every fucking thing prophylactically. You know what I mean? I would be dead. Right? I mean I would be like a goner.”
“I would imagine.” It's interesting how freely I talk about my own death in realistic terms. To be honest, I've never been afraid of 'death.' To me that's like being afraid of the sun setting. It's gonna happen. It is what it is.
“This Tykerb? Super Herceptin? Same formula?”
“Works on two receptors so it’s a double blocker.” Coolio. We like having more than one of things.
Next I go into 'overscreening' myself. Because I choose to. Because I insist on it. Because the whole freaking Cancer Center knows me by now and knows that I'll keep bugging them and 'popping in' till I get what I want. Sometimes I do pop-ins on Schwartz; it's easier than going through/relying on the call staff for messages. And he always, always takes the time to answer my questions, no matter how paranoid or over the top they are.
“And you’re okay if I do the sonogram just for peace of mind."
“Yeah, I’m okay with it.”
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Monday, November 16, 2009
I swear I'm transcribing Schwartz's report on me today after my to-do list has enough scratch-outs on it.
I have 17 days to hire movers and get out of dodge. Fuck me. I was SO psyched to try PODs, but they're booked on my date. Gah.
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Saturday, November 14, 2009
Photo Fantastic
These are Ben's photos of the end of the shoot with Laura for Heeb on Wednesday. Eagerly awaiting Laura's edits so I can post all of hers, which kick ass!
You all should hire Ben (shameless friend-plug). This was the night before Mesko, surprising how relaxed I was, huh? Because it feels so fucking good to be creative in an editorial way.




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Friday, November 13, 2009
Kicking Ass in Chanel
That may be a decent book title.
I do so apologize for the lack in blogs.
I tend to forget to post the major news here, as I kind of assume that you readers are among my 1,000+ Facebook friends? But some of you are not, soooo. . . .
Yesterday was my sonogram with Mesko. Eight-thirty a.m. Yes, I woke up. The only exceptions to my sleeping-late schedule are doctors' appts, surgeries and flights.
I'll save you the suspense except to say that I was tres nervous—I was by myself, potentially facing baaad news for the first time.
And I should point out that my insistence upon a sonogram in addition to last week's checkup with Schwartz was all me. Translation: I was requesting 'overscreening.' For factual evidence and peace of mind. Schwartz and Mesko were happy to participate and, though technically the sonogram was not necessary this early, they said "we'll do whatever you want."
Overscreening and insisting on what you need is where it's at, Cancer kids. Maybe overscreening is the new black? The head of the ACS would love that (the fucking idiot).
Well, let me tell you, the comfort I got by looking at the sonogram pictures with Mesko was beyond priceless. Not only could he measure each enlarged node to tell me how much they've shrunk—yes, all the tumors have shrunk! I totally buried the lead here. But by requesting a sonogram I could see with my own eyes the physical effects the meds have had. Thank fucking god that all the nodes showed significant shrinkage in a mere month!
I saw the proof. I overscreened. And I can tell Mesko was pleased both with the results and the fact that he did the sonogram. Thank god for doctors and nurses who heart me!
I've run out of time but lots more fun stuff to talk about. Wait till you see the AH-MAAZING photos Ben and Laura shot of me on Wednesday. They are beyond and we had a fucking blast doing it.
The most major (non-Cancer) news is that I'll be reading at Books & Books (not sure which one yet) Friday December 11—come one come all! xoxo
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Monday, November 09, 2009
Some of you are new readers, some are friends, family and colleagues. I’ve been writing about my Breast Cancer journey for nearly two years now. Thinking that my Breast Cancer babbling was a finite thing. I mean, Schwartz (see Cast of Characters) calculated my recurrence chance at eight percent. I’ve always been at the top of my class, so perhaps I should’ve seen it coming. After being diagnosed with Stage II, high-grade, infiltrating, ductal cell carcinoma on Dec. 4, 2007, I tested positive for the BRCA1 genetic anomaly. Aka, I had one of the “Breast Cancer genes” that statistically indicated that at 32 years old, doing anything short of a bilateral mastectomy and chemo, the Cancer would likely come back fast and furious. After dumping El Schmucko—the negligent surgeon who performed a lumpectomy and before the biopsy results informed Mom and Dana that it was “nothing,”—and the first, dour-verging-on-bitchy oncologist we consulted with, I went on Sloan-Kettering’s Web site. I scrolled through the masthead of its breast oncologists.
At the very top of the list is Dr. Larry Norton, the Anna Wintour of Breast Cancer, I knew I had to get in to see him; my family and friends were hopeful I’d get the mastectomy and do the chemo. Prophylactically. I think I went through the five stages of grief in about two weeks. I’ve always been an overachiever. An impatient one at that. After the initial, ‘I’m-single-I don’t-want-my-fucking-breasts-cut-off” stage, I began to come around. ‘Oh, fuck it,’ I thought, ‘I hate my saggy, 34C stretch-marked boobs anyway.’ My family and I put out our feelers—we needed to get in to see Norton ASAP. Within a day or two, I was in. There is no doubt in my mind—no doubt whatsoever—that being extremely well-connected was an integral part of my wellness. I make no bones about it—I’m just lucky that way.
The four of us piled in to Norton’s office in the winter of 2008. Mom, Dad and Brother, who handed me a sacred red string from some holy place in India. I’d only seen dad cry once in my life; at his father’s funeral nearly 20 years ago. I sat down across from Norton, still wearing my gloves while paging through a magazine.
“Why are you wearing your gloves?” he asked.
“Germs. I’m a germaphobe. And all these ‘please wash your hands signs are freaking me out even more.”
“You don’t need to worry about germs on things like paper,” he said bemusedly. “It’s mainly surfaces that absorb human heat—metal, glass,” etc.
“Ha! See why I don’t ride the subway,” I gloated to my Brother, finally vindicated.
In that hour consult, Norton elucidated all the muck and jargon that other doctors had thrown at us. This man knew his shit. There’s indeed a reason he’s been at the top of the masthead for years. There’s a reason why his patients go on to donate billions to the Sloan Breast Center. Yes, billions. His patient list—a Jewish Social Register; The Forbes List.
I asked him the question I always ask doctors—penetrate their AMA guard and force them to see me as Stephanie Green, not patient number whatever.
“If I were your daughter, what would you tell me to do?”
“I would tell you that the safest option would be to have the mastectomy and the chemo.”
“Okay then. Done. Let’s lop ‘em off and put ‘em back on. Who is the best oncologist in Miami?”
“I trained Michael Schwartz [at Sloan].” Schwartz’s name had also come up in our research.
“Done. He’s my guy.”
We headed to Bergdorf’s and the jeweler.
After I got back to Miami Beach, I was never alone for one minute of any of my treatments, consults or procedures. My family came down in planned out rotations. Mom and Dana at nearly every chemo, Dad when he didn’t have a trial or something going on, Brother flying in from NY for the mastectomy and what would turn out to be my worst chemo treatment yet. After seeing Schwartz and gathering my “team,” (also see Cast of Characters), I gutted my insides. Had “jet fuel,” as Dr. Laura calls it, pumped into my system for four months, Herceptin infusions for one year, had inflatable balloons inside my hollow chest for months, had aureolas and nipples constructed from a skin graft by Rosenbaum, lost all my hair—in short engaged in every possible Breast Cancer treatment as a safeguard against a potential, deadly recurrence.
Cut to 20 months later. Hair back thick and gorge as ever, assisted by Oribe and Momotaro. My oncological gyno, McHottie, aka Jacob Tangir, felt an enlarged node on my neck. On October 5, mom, Lynn (see Characters) and I were back in Schwartz’s office. I could read his face instantly—he’d only ever given me good news.
“It’s a malignancy. The Cancer is back.”
Last night, I was sitting on my couch replaying that day in my head and I started cackling with laughter. There we were again, in Schwartz’s office, mom and Lynn in their matching Jimmy Choos (unplanned), me on three Xannies and Schwartz. And as soon as he said It Was Back, three high-maintenance women hysterically bawling, his head swiveling from one to the other. Any other man would’ve run for the hills. But Schwartz knew us; he could take the three coiffed, bejeweled (in our ‘every day’ jewelry) women throwing an emotional hissy.
“But—eight percent! You said eight percent. I don’t understand. Are you surprised?” I think it was the only time I’d ever harbored any resentful-esque feelings toward one of my docs.
But Schwartz was pretty fucking shocked. He’d reached out to Norton after palpating the enlarged node, before Mesko had even shot me with the biopsy gun. Hell, I’ve never been ‘normal,’ why should Cancer be any different? After the PET scan, he was relieved to tell us that it had only come back in the neck nodes and the nodes behind my sternum. Yup, behind our sternums lurk potentially deadly nodes. Fun! Immediately I was started on oral chemo. Eleven horse pills a day with minimal side-effects and no hair loss. I never wanted to wear my $4k, couture wig by Ralf again. Nobody was fucking with my Oribe. Fuck you, Cancer.
After another agonizing month of waiting, this time to see whether the Chemo Cocktail was working, Mom arrived on Friday for our 1 p.m. appointment with Schwartz. When she walked in to my apartment, after her typical bat-out-of-hell-drive from Jax—‘wake up at 5 a.m. be to Steph’s by 11 if I go, 90 mph and have a good book on CD,—the first thing I noticed were her shoes. I’m very superstitious. She was wearing the cursed Choos.
“Take those shoes off!” I screeched and retreated from her like she had the H1N1. “Take them off! You can’t wear those!”
“What, why? What’s wrong they match?!”
“Those are the shoes you and Lynn were wearing when I was re-diagnosed! Hurry, take them off!”
“Okay, okay! I need some sandals or flats then!”
I ran into my closet and began projectile vomiting shoes. Gold brocade Manolo flats.
“Those don’t match!”
I didn’t feel like having the old ‘gold is a neutral’ argument with her—I had my own Talismen-guided wardrobe to consider.
I threw black and white Jack Rogers out at her.
“Ok, well, you’re going to be introduced to Jack Rogers Mom. Seventy-five bucks, available in every color combo under the sun and comfortable.”
The Wiccan Health Spell candle I’d received from my friend at the New York Post was burning, I’d said the chant, and had my Talismen on. Hermès cuff Mom and Dad bought me on the post-It Hasn’t Spread Bal Harbour jaunt; holy red string from India; pendant from India that circulated the Subcontinent with both Michael and Hemley; an Indian ring from Hemley; and mom’s black patent Louboutins. Which really held no spiritual value except for the fact that they are the only Louboutins that have ever fit my wide, chubby feet. I briefly thought about taking off my Tank watch, for Acupuncturist had taken it off the night before so as not to inhibit my Chi, but I didn’t quite go that far. You have to draw the line around crazy at some point.
Off we went to the hospital, again. I barely let mom speak because she’s so Pollyanna that I see nearly everything she says a jinx with regards to the Cancer. Christ, I was on two Xannies and still wired. Blood work was drawn. I asked to see Schwartz stat so that I could film what he said, as mom’s note-taking skills were not that of a trained journalist. He determined that the cocktail seemed to be doing its job—the CBC showed that my body was tolerating the Xeloda and Tykerb well. I was slightly disconcerted that the CA 15-3 tumor-marking blood work was not ready. That’s always been the guague of whether treatment is working. Yet, as your body’s levels of whatever spike when you start chemo, that test won’t be accurate for another month. However, he felt the lump and liked the way it felt. Ooh la la! He took out a tape measure. Ha! The only reason I hadn’t done that is because I couldn’t find mine. He took a Bic and drew a circle around the lump. It’d shrunk by .4 cm in a month. Sweet.
“Ah, medical technology. I love it.”
I was used to this blend of high and low culture in medicine. Rosenbaum had used the remnants of a roll of surgical tape to trace the size of my aureolas he would create. They turned out perfectly. Genetic vaccines, PARP inhibitors, new and improved Breast Cancer drugs developing at warp speed—and tape measures.
It was once again, “the best news we could hope for.”
Shit, I started writing this as an intro to the transcription of my check-up interview with Schwartz and it’s turned into this 1,500 word essay. Oy. Haven’t even checked email or changed out of my PJs. But I’ve already taken nine horse pills!
I’ll transcribe the tape later. I suppose I should start my Saturday.
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Stephanie Green
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9:29 PM
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Sunday, November 08, 2009
Weediculous!

Quote of the Sleepless Night: "Dude! You guys like, inspire me to become an adult!"
—The "Tiki Kids," Lincoln Road Saturday Nov. 8, 2009
Posted by
Stephanie Green
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8:19 PM
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Saturday, November 07, 2009
Some of you are new readers, some are friends, family and colleagues. I’ve been writing about my Breast Cancer journey for nearly two years now. Thinking that my Breast Cancer babbling was a finite thing. I mean, Schwartz (see Cast of Characters) calculated my recurrence chance at eight percent. I’ve always been at the top of my class, so perhaps I should’ve seen it coming. After being diagnosed with Stage II, high-grade, infiltrating, ductal cell carcinoma on Dec. 4, 2007, I tested positive for the BRCA1 genetic anomaly. Aka, I had one of the “Breast Cancer genes” that statistically indicated that at 32 years old, doing anything short of a bilateral mastectomy and chemo, the Cancer would likely come back fast and furious. After dumping El Schmucko—the negligent surgeon who performed a lumpectomy and before the biopsy results informed Mom and Dana that it was “nothing,”—and the first, dour-verging-on-bitchy oncologist we consulted with, I went on Sloan-Kettering’s Web site. I scrolled through the masthead of its breast oncologists.
At the very top of the list is Dr. Larry Norton, the Anna Wintour of Breast Cancer, I knew I had to get in to see him; my family and friends were hopeful I’d get the mastectomy and do the chemo. Prophylactically. I think I went through the five stages of grief in about two weeks. I’ve always been an overachiever. An impatient one at that. After the initial, ‘I’m-single-I don’t-want-my-fucking-breasts-cut-off” stage, I began to come around. ‘Oh, fuck it,’ I thought, ‘I hate my saggy, 34C stretch-marked boobs anyway.’ My family and I put out our feelers—we needed to get in to see Norton ASAP. Within a day or two, I was in. There is no doubt in my mind—no doubt whatsoever—that being extremely well-connected was an integral part of my wellness. I make no bones about it—I’m just lucky that way.
The four of us piled in to Norton’s office in the winter of 2008. Mom, Dad and Brother, who handed me a sacred red string from some holy place in India. I’d only seen dad cry once in my life; at his father’s funeral nearly 20 years ago. I sat down across from Norton, still wearing my gloves while paging through a magazine.
“Why are you wearing your gloves?” he asked.
“Germs. I’m a germaphobe. And all these ‘please wash your hands signs are freaking me out even more.”
“You don’t need to worry about germs on things like paper,” he said bemusedly. “It’s mainly surfaces that absorb human heat—metal, glass,” etc.
“Ha! See why I don’t ride the subway,” I gloated to Brother, finally vindicated.
In that hour consult, Norton elucidated all the muck and jargon that other doctors had thrown at us. This man knew his shit. There’s indeed a reason he’s been at the top of the masthead for years. There’s a reason why his patients go on to donate billions to the Sloan Breast Center. Yes, billions. His patient list—a Jewish Social Register; The Forbes List.
I asked him the question I always ask doctors—to penetrate their AMA guard and force them to see me as Stephanie Green, not patient number whatever.
“If I were your daughter, what would you tell me to do?”
“I would tell you that the safest option would be to have the mastectomy and the chemo.”
“Okay then. Done. Let’s lop ‘em off and put ‘em back on. Who is the best oncologist in Miami?”
“I trained Michael Schwartz [at Sloan].” Schwartz’s name had also come up in our research.
“Done. He’s my guy.”
We headed to Bergdorf’s and the jeweler.
After I got back to Miami Beach, I was never alone for one minute of any of my treatments, consults or procedures. My family came down in planned out rotations. Mom and Dana at nearly every chemo, Dad when he didn’t have a trial or something going on, Brother flying in from NY for the mastectomy and what would turn out to be my worst chemo treatment. After seeing Schwartz and gathering my “team,” I gutted my insides. Had “jet fuel,” as Dr. Laura calls it, pumped into my system for four months, Herceptin infusions for one year, had inflatable balloons inside my hollow chest for months, had aureolas and nipples constructed from a skin graft by Rosenbaum, lost all my hair—in short engaged in every possible Breast Cancer treatment as a safeguard against a potential, deadly recurrence.
Cut to 20 months later. Hair back thick and gorge as ever, assisted by Oribe and Momotaro. My oncological gyno, McHottie, aka Jacob Tangir, felt an enlarged node on my neck. On October 5, mom, Lynn and I were back in Schwartz’s office. I could read his face instantly—he’d only ever given me good news.
“It’s a malignancy. The Cancer is back.”
Last night, I was sitting on my couch replaying that day in my head and I started cackling with laughter. There we were again, in Schwartz’s office, mom and Lynn in their matching Jimmy Choos (unplanned), me on three Xannies and Schwartz. And as soon as he said It Was Back: three high-maintenance women hysterically bawling, his head swiveling from one to the other. Any other man would’ve run for the hills. Man, poor guy. But Schwartz knew us; he could take the three coiffed, bejeweled (in our every day jewelry) women throwing an emotional hissy.
“But—eight percent! You said eight percent. I don’t understand. Are you surprised?” I think it was the only time I’d ever harbored any resentful-esque feelings toward one of my docs.
But Schwartz was pretty fucking shocked. He’d reached out to Norton after palpating the enlarged node, before Mesko had even shot me with the biopsy gun. Hell, I’ve never been ‘normal,’ why should Cancer be any different? After the PET scan, he was relieved to tell us that it had only come back in the neck nodes and the nodes behind my sternum. Yup, behind our sternums lurk potentially deadly nodes. Fun! Immediately I was started on oral chemo. Eleven horse pills a day with minimal side-effects and no hair loss. I never wanted to wear my $4k, couture wig by Ralf again (holy shit, forgot to include Ralf in the cast of characters. Raphael Mollica, couture wig-maker to the stars and the A-list Cancer Patients. Apprenticed under Vidal, saw Doris Duke every week of her life.) But now I had Oribe. Nobody was fucking with my Oribe.
After another agonizing month of waiting, this time to see whether the Chemo Cocktail was working, Mom arrived on Friday for our 1 p.m. appointment with Schwartz. When she walked into my apartment, after her typical bat-out-of-hell-drive from Jax—‘wake up at 5 a.m. be to Steph’s by 11 if I go, 90 mph and have a good book on CD,—the first thing I noticed were her shoes. I’m very superstitious. She was wearing the cursed Choos.
“Take those shoes off!” I screeched and retreated from her like she had the H1N1. “Take them off! You can’t wear those!”
“What, why? What’s wrong they match?!”
“Those are the shoes you and Lynn were wearing when I was re-diagnosed! Hurry, take them off!”
“Okay, okay! I need some sandals or flats then!”
I ran into my closet and projectile vomited a pair of gold brocade Manolo flats.
“Those don’t match!”
I didn’t feel like having the old ‘gold is a neutral’ argument with her—I had my own Talismen-guided wardrobe to consider.
I threw black and white Jack Rogers out at her.
“Ok, well, you’re going to be introduced to Jack Rogers Mom. Seventy-five bucks, available in every color combo under the sun and comfortable.”
The Wiccan Health Spell candle I’d received from my friend at the New York Post was burning, I’d said the chant, and had my Talismen on. Hermès cuff Mom and Dad bought me on the post-It Hasn’t Spread Bal Harbour jaunt; dress worn at Cunty's birth; holy red string from India; pendant from India that circulated the Subcontinent with both Michael and Hemley; an Indian ring from Hemley; and mom’s black patent Louboutins. Which really held no spiritual value except for the fact that they are the only Louboutins that have ever fit my wide, chubby feet.
I briefly thought about taking off my Tank watch, for Acupuncturist had taken it off the night before so as not to inhibit my Chi, but I didn’t quite go that far. You have to draw the line around crazy at some point.
Off we went to the hospital, again. I barely let mom speak because she’s so Pollyanna that I see nearly everything she says a jinx with regards to the Cancer. Christ, I was on two Xannies and still hopped up like a Meth head. Blood work was drawn. I asked to see Schwartz stat, so that I could film what he said, as mom’s note-taking skills were not that of a trained journalist. He determined that the cocktail seemed to be doing its job—the CBC showed that my body was tolerating the Xeloda and Tykerb well. I was slightly disconcerted that the CA 15-3 tumor-marking blood work was not ready. That’s always been the guague of whether treatment is working. Yet, as your body’s levels of whatever spike when you start chemo, that test won’t be accurate for another month. However, he felt the lump and liked the way it felt. Ooh la la! He took out a tape measure. Ha! The only reason I hadn’t done that is because I couldn’t find mine. He took a Bic and drew a circle around the lump. It’d shrunk by .4 cm in a month. Sweet.
“Ah, medical technology. I love it.”
I was used to this blend of high and low culture in medicine. Rosenbaum had used the remnants of a roll of surgical tape to trace the size of my aureolas he would create. They turned out perfectly. Genetic vaccines, PARP inhibitors, new and improved Breast Cancer drugs developing at warp speed—and tape measures.
It was once again, “the best news we could hope for.”
Shit, I started writing this as an intro to the transcription of my check-up interview with Schwartz and it’s turned into this 1,500 word essay. Oy. Haven’t even checked email or changed out of my PJs. But I’ve already taken nine horse pills!
I’ll transcribe the tape later. I suppose I should start my Saturday.
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Stephanie Green
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4:05 PM
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Thursday, November 05, 2009
All-Kinda-Sorta-Clear
All's well—Schwartz literally did take out a tape measure to gauge the size of the largest node. According to his measurements, that tumor has shrunk by .4 cm in a month, which he was very pleased with.
Today I actually videotaped everything he said; asked all the questions I'm usually too fucked up to remember to ask. I interviewed him about everything from my case and treatment plan to emerging therapies to information for you guys. (He was actually talking to my "audience"—uh, you guys—at one point.) I plan on transcribing the whole convo on the blog—I was also SURE to ask him about the mammos at 40 debate; how Obama Care will affect oncologists etc.
I gathered a lot of factual information for you guys about the 40-versus-younger mammogram debate.
Heading out to dinn to celebrate—instead of retail therapy this time we headed to Books & Books so mom could see the Heeb book (and take cheesy photos of me holding it like a douche).
However, we will be at Sawgrass tomorrow morning. Winter clothes. All-clear to leave this city whenevs. Next Schwartz checkup is first week of Dec. and then next will be with Norton in NYC. Alright, time to start the NY job search I suppose!
Thank you all, each and every one of you for the emails, thoughts, prayers and general goodness you send my way. xoxo
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Stephanie Green
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7:25 PM
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Wednesday, November 04, 2009
Yup, tomorrow's C-day—my blood work is at 1 p.m. and I see Schwartz at 1:20. So by 2 p.m. tomorrow I'll either be tranquilized or tranquil. Let's hope for the latter, shall we?
I've got my Wiccan health candle burning, just saw Chad—who indeed felt that fucking bump on my rib cage, which could be an inflamed anything—for a massage and needle tune-up.
Mesko and Schwartz were both fine with me doing an ultrasound as a backup screening tool. Now, remember this is not a part of a regular follow-up protocol. This is me, the Cancer queen, going above and beyond for my own peace of mind. (And to collect the hard evidence. I think I should have X-rays and slides and such in the book, no? See? All you have to do is ask, ladies. Sure, blood work is the protocol—but I want more. And I shall receive. Good luck getting a sonogram under Obama Care without about two months worth of red tape. I'm in next week.
Oops. Wally's farting. Must walk him. If you're a friend or family friend, I will try to send out a mass e-mail w/the results. And NYC, MIA and Jax peeps we'll have a text message thing going on. Fingers crossed, candle lit—my future will literally be determined by what I find out tomorrow. No biggie.
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Stephanie Green
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9:04 PM
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Tuesday, November 03, 2009
Twenty-four percent of lives can be saved by early detection for Breast Cancer. This ri-fucking-diculous debate over advance screening is just so beyond absurd. IT CAN DO NO HARM, THEREFORE WHAT'S THE FUCKING STORY? Douchebag head of the ACS.
Anywho, whew, once again my lovely and talented Sloan doc, Larry Norton, was called in for the counterpoint in the New York Times article, Quandry With Mammograms. To tell the fucking truth—that early detection, advance screening and genetic testing save lives like mine. So I guess I'm one of that 24 percent.
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Stephanie Green
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8:45 PM
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Monday, November 02, 2009
Just The Stats, Please
Can someone tell me how not to freak out in the interim between now and Thursday? When I go to Schwartz to get labs and see IF this Chemo cocktail is working?
Since Cancer Is the New Black is on my runway again this season, I thought it was time for a refresher on the cast of characters whom I usually refer to by last name and or title.
This is my "team." I have a fucking team. Who am I? Phil Jackson?
Michael Schwartz—primary oncologist Miami Beach
Larry Norton (aka Anna Wintour of Breast Cancer)—oncologist at Sloan
Gary Rosenbaum—plastic surgeon
Thomas Mesko—breast surgeon
Laura Rappaport (aka Dr. Laura)—Los Angeles based psychotherapist, who I've been with for 10 years and do phone sessions with
Ilan Melnick—Miami Beach psychiatrist/psychopharmacologist
Chad Bailey—acupuncturist, nutritionist, Oriental medicine PhD, all around guru/healer
Jacob Tangir (aka McHottie)—oncological gynecologist
(For those of you in a Breast Cancer situation, yes, these are THE only doctors I would send anyone to. All of 'em. Happy to connect, as usual.)
I lay in bed at 1 a.m. last night after popping a Seroquel and was feeling around my sternum. What I felt was a lump; when I stood up it looked and felt like my breast bone. Although I was reading a Gossip Girl novel—the BEST distraction ever—after about 20 minutes of feeling myself up, I had to pop a Klonopin. I simply cannot live like this—obsessively feeling every inch of my body for lumps. I don't even know what every inch of my body is supposed to feel like—do you? I mean, WTF? Is that a tendon or a foot-long tumor? A knot in my neck or a malignancy? You get the drift.
So this a.m. after obsessing all night—though I did manage to relax in Naples over the weekend and got a great facial that eradicated the disgusting acne the Chemo cocktail is causing—I decided to be even more proactive.
The order of the recurrence events are as follows. (Some of you may remember, but it's kind of an unusual situ. Unusual, moi? No way.)
I was at McHottie's office for a regular gyno check up. He specializes in "down there;" is the onco surgeon who would remove my ovaries; and is quite possibly one of the sexiest men alive. A Moroccon Jew by way of Argentina I believe. When his hand is up your vjayjay, you don't feel a thing cause, well, you're drooling and he's talking to you in a soothing manner. He palpated my neck; found the enlarged node. Next up was Mesko, who did the ultrasound and biopsy, with the ultrasound showing lots of enlarged nodes in the neck. The largest one being the one McHottie had discovered. Finally, the bloodwork run by Schwartz proved the nodes were malignant and that The Cancer Was Back. Oct 5—four weeks ago today.
Okay, so an ultrasound (sonogram) for CPs works the same way as it does for Breeders. The diff being the only thing living inside this bitch is Cancer. The sonogram allows Mesko (and me, if I'm not too much of a pussy to look at the screen) to immediately see the tumors, their locations etc., but also enables Mesko to determine the exact size of the malignancy in centimeters.
I'm a journalist. I need the facts. I want backup for the facts. I want sources and dates and times and all the research I would need if I were covering a story on someone like me. I am covering a story on me, after all.
So, my question this morning was: Why not have another sonogram in addition to the blood work Schwartz will run on Thursday? That way Mesko could compare the films from last month to this month. I called Mesko's office and spoke to his amazing nurse Peggy and ran the scenario by her. She didn't see why not, but I had to have Schwartz verify. Just spoke to Schwartz.
"Doc, you know how obsessive I am. I just don't think I can deal with this whole feeling the lumps thing without some concrete proof they are shrinking. You know, I want the numbers. I just need this to put my mind at ease. So is that out of the question/unreasonable/paranoid crazy?"
He said there's no harm in it; whatever makes me happy. So now I'm waiting on Peggy's call back to see if Mesko can see me after Schwartz on Thursday. Mom—in her typical, sadistic way of transporting herself here—is leaving Jax at like 5 a.m. to arrive in time for the appointment. In the meantime, I'm burning my candle that a Wiccan high priestess from New York cast a "health spell" on every day and night. I have a chant and everything. It's super cool. And within the chant, I finally found myself a mantra that's easy to remember and rhymes.
I guess I'm as ready as I'll ever be for Thursday. Until then, stay tuned for the craziness.
Oh, and if you haven't already, please watch this video of Norton on ABC World News Tonight, where he smacks down that bastard who heads up the American Cancer Society, regarding early detection, which saves lives like mine.
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4:09 PM
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Friday, October 30, 2009
Random Thoughts by Stephanie Green
It didn't occur to me that Jack Handy's "Random Thoughts" on SNL were really just odes to 420, most likely written at or after 4:20 p.m.
I often think of doing a random thoughts post, and since I'm presently ensconced alone in a soft bed at the Ritz in Naples with nothing but time on my hands, here goes.
My Vaseline-sealed rose-colored aureolas are looking mighty fine. The marks the paper tape has left all over my boobies are not.
Ever feel like when you watch TV the voices don't match the actors' mouths?
I wish they'd cancel Law & Order just so I'd stop watching it.
I don't like being topless. It's cold, and I have to look at my fat rolls when I'm sitting.
Today I've eaten two bites of a Publix veggie wrap that sucked ass (hence the two bites), a bag of Soy Chips, a banana, a split of champers and four of these amazing biscotti balls from the restaurant.
I like the *idea* of traveling alone, but then I quickly realize I don't like myself that much as a travel companion.
I'm staring at a coral reef replete with shells, sea life and sand—composed entirely of chocolate and sugar. Standard yet stunning touch for VIPs.
I'm usually a 'VIP guest' merely for being a writer. We don't get paid a lot, but we get treated like godesses. Natch, I love every minute of it. So do my friends who travel with me.
The beachfront restaurant here closes early because of the Sea Turtles. Must investigate that tomorrow.
I'm going to lay out in the sun and get a sick tan while I'm here despite the fact that I'm on Chemo pills that advise against it. Fuck you, Cancer.
My god why am I still watching Law & Order?
Julia Louis-Dreyfus is a fucking bad ass. Did you know she's a Dreyfus, Dreyfus? Like the banking family . . .
I'm reading Carol Alt's roman a clef—thanks a lot, Mackenzie!
FranBrand? Seriously? Oy.
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8:27 PM
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Tuesday, October 27, 2009
Tattoos Round Two
People wonder why I love Dr. Rosenbaum so much? His office # doesn't hurt!
Disclaimer: This is a full-frontal post, as my nips were tattooed for the second time yesterday and journalistic (e.g. not so pretty) photos are below.
I woke up back in fighting mode yesterday as opposed to surrender/give-up mode. I took the weekend to be alone, which I needed after a few weeks of constant attention and overpopulation in my little world. I've also booked myself for this weekend at the Ritz-Carlton in Naples—only an hour-and-a-half drive from here, it's an easy getaway. I'm heading there solo as well, I love traveling by myself, catching up on reading and writing etc.
I think my mind just got sick of one emotion—grief—and decided it was time for me to harness my anger into something constructive like kicking some Cancer ass (hopefully). Some really fabulous things have been happening lately too. I have my little literary guardian angels doing some leg work for me regarding Cancer Is the New Black.
I also learned today that Heeb scored me a reading of Sex, Drugs & Gefilte Fish at Books & Books, which is basically The Strand of Miami. (Date TBD.) In fact, they recently renovated and have an entire Assouline room, not bad for the South! I went in to grab a gift for one of my angels and was pleasantly surprised to see a fat stash of the Heeb book. So rather unexpectedly, I stumbled into the Requisite First Time Author Experience—seeing your book in a bookstore. Pretty cool. I'm slowly accepting the fact that though I have nary a dime to show for it, maybe I'm (kinda sorta) successful after a mere 14 years in this biz.
I have a rescheduled session with Dr. Laura in a few, since I slept through the last one, though I shouldn't have popped 1/2 a Klon cause she can totally tell when I'm medicated. Boys, you may want to stop reading at this point.
Oh, the point of the post: I had my second nipple tattooing yesterday. Esther Steinberg, the permanent makeup artiste, was SO thrilled with how the nips looked from the first session. She wants to put me—er, the boobs—on her Web site to show off. So now I'm a model too. Hemley came with again, and our off-the-wall session served as our farewell before he moves to L.A. for love:)
Hems and I hamming it up in the waiting.
She's just beginning to fill in the color here, so what you see is how they looked before, after the first tatting.Filling in the color and making the aureolas a little bigger, to conform with the graft Rosenbaum did.
More of the same. One week of Vaseline—did you know that Vaseline seals up wounds?—and bandages under clothes. When I'm alone at home, I just walk around topless slathered in Vaseline, which is how I'm typing at the moment. Trust me, it ain't sexy in the least.
I don't have time to edit or spell check. So, ta.
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Sunday, October 25, 2009
Sunday Bitchfest
Even though the song is about a woman, Tom Petty pretty much nailed life with one line: "The waiting is the hardest part." In my case waiting till Nov. 5th to get the results on whether the chemo is working or I'm dying.
I'm going to go from bad to good right now, in an effort to cheer myself up, so to speak. If I were "cheery," I'd send myself straight to Bellevue. I've been oversleeping—which to me means like 12 p.m. and after—that's what I do when I'm depressed. So much so that I fucking slept through my phoner with Dr. Laura on Friday; that extra hour of sleep cost me $210. (And that's a grandfathered rate.)
The Xeloda side effects—bone and joint pain and stiffness—subsided about 30 percent this week. In yesterday's Ashtanga class, my instructor said my 'flow' looked a lot better. Chad and I figured that the reason the pain was centralized in the sternum, neck, back and shoulders is that the oral chemo (Xeloda) finds the Cancerous areas and goes right there. For, my sternum area and neck and clavicle are really swollen. Like, I can barely see my clavicle bone and I'm a size two (finally, again), who's clavicle is usually jutting out.
Went to Chad Friday who said that the node—fuck you node!—felt about the same. Which to alarmist me translates to: Omigod it's not working, oh shit what if it's not working how am I going to get through Nov. 5th. Fuck I can't believe this isn't working, then again why should it work the last regiment didn't fucking work.
Then what's left of my rational side—aided by Klonopin, natch—thinks: Calm down you motherfucker. You're making this psychosomatically worse and given what Chad told you about the Oriental medicinal philosophy about disease recurrence, you need to check yourself on these thoughts.
So the 'rational' side of my brain is trying to tell the other part to recognize that the fact that the node hasn't grown is perhaps an indication that it is working. I need to get away; I'm looking into going to Naples for the weekend. Haven't been there in years, hear the Ritz is nice and it's a short drive. It's either that or Restylane, which I'm in desperate need of at the moment. My skin seems to be really hating the chemo. Which ever works out to be cheaper—two nights at the Ritz or Restylane.
I have my second nipple tattooing tomorrow, but don't expect any photos as I'm going alone.
Okay here's the bad stuff, in no particular order:
• The Cancer has made New York living seem like an impossibility in 2009, which means moving back home. To Jacksonville. With the parents. At 34. With nary a thing to do in the town. Nothing to do and too much time on my hands is always a bad thing for me.
• I am scared to make plans. Because just when I decided to leave this fucking place, the Cancer decided to put the kaibosh on that plan. This fact—that my only plan is once again giving up and moving in with my parents—makes me want to rip my eyeballs out when people (who mean no harm) ask me, 'So what about New York?' What about it? I don't fucking know. These non New-Yorkers don't realize that moving to New York is not exactly simple. When New York? I don't fucking fuckity fuck know, okay? At this point, it's looking like New York, New York only if I magically get a job or a book deal or something really un-bloody-likely like that. I'm going up in December for a visit and another Jap straightening session.
• I'm having extreme difficulty being around outwardly shiny happy people right now. I've begun to realize that when people call Los Angelenos and South Beach people 'fake,' what they really mean is fake-happy. Like smiling all the time happy. When I go out with my NYC girls, we have a blast, but we bitch. There's always something fucked-up happening to one or more of us; that's life. And it's interesting and keeps you on your toes and is infused with a sense of urgency and greatness because you're in the center of the universe together. Not here. Bad shit happens here but somehow people still smile because, why? The ocean? The drugs?
• I'm going to get a lot of flack for this, and to my wonderfully supportive friends whom I'm speaking of I mean absolutely no harm. I envy your happiness and am pleased that your lives are sunshine and roses. Well, mine's not. And you readers know better than anyone that faking it is pretty hard for me. So jesus, is it hard for me to be around shiny happies now. At dinner the other night with like eight or so of us, I found the girls literally going around the table and updating everyone on their lives. Like, normal people stuff. Babies and boyfriends and sex and all that stuff that makes life fun. And then they arrived at me. The Cancer patient. I can imagine them thinking, 'Oh, whoopsie, maybe going around the table announcing how great our lives are is not the best thing to do when you have a Cancer friend sitting at the end of the table.'
So what was my update? I had to wrack my brain for something decent. "Well, my first book came out. So I guess that's kind of cool."
Oohs and ahhs all around like the great supportive friends they are, however it was all I could do not to run out of that dinner, take a cab home, and bawl to the point of needing sedation. (Serious sedation—Seroquel. Google it. It's an anti-psychotic. I'm no James Frey. I'm the real fucking thing. Goody.)
This feat is very "eh" to me. The Heeb magazine storytelling collection Sex, Drugs & Gefilte Fish (Hachette, I believe, I'm too lazy to get up and check) is now available. I'd been directing people to the Amazon Canada site since it seems to have launched there already when it officially releases in the States tomorrow. I've got one essay in the book. And the book looks good—though it's in paperback—but having it in my hands cheers me little. Mom bought several copies and mailed me one—paying for my own book? Don't think so. I admired the cover, magically opened straight to a page of my essay by sheer coincidence. Read my bio at the back and then stashed it with all my other coffee-table books. Let me ask you other authors and writers—should I be over-the-moon about this? Or is being in a book such as this just as lukewarm a career move as it feels? I'm sure it's a great book. It's just not my book. My friends in the industry tell me this will be a good resume-builder, but I don't exactly know how to work "Sex, Drugs & Gefilte Fish" into a proposal about a Cancer memoir.
Now I can't really think of any good things happening—except for Laura Zigman and Mackenzie and the Wiccan goddess, all of whom really rocked it out for me these past couple of weeks and gave me some stuff to look forward to. Love you guys. And simply cannot wait for my Wiccan candle, with magic spell and mantra attached to arrive. More on that later.
Buy the book, don't buy the book. What does it matter? Otherwise, you can read my essay for free here. It's pretty much word for word. Save the money and buy yourself a good bagel and schmear. Actually, buy Laura's books—I've actually read and highly recommend those. Chances are I'm not even going to read the book I'm in.
God, I'm really hitting a self-loathing Zenith. Another milestone!
Thank god for Curb.
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Thursday, October 22, 2009
The Final Word on Early Screening
Go doctor, go doctor. That BCA article in Vogue by Elizabeth Weil that so pissed me off because it purported that early screening was not only unnecessary but can do us harm? That IDIOTIC head of the American Cancer Society who just came out questioning the benefits of early testing?
My doctah at Sloan, Larry Norton, once again smacked those bitches down last night on ABC's World News Tonight. Mel alerted me to his appearance. Watch it here on ABC.
Loves my Doctah Norton!!
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Wednesday, October 21, 2009

Although I stay away from the pervasive PINK-ness of this month—this site is totally cool. Boobicon. Make your own nifty photo badge like moi.
Some good things have happened this week, natch I can't discuss. But my spirits are a little lifted. Still obsessively feeling the node though. Who knows of cool pill-cases? Cause fuck it all to hell, I keep fretting over whether I've taken the right pills at the right time.
On another note, directed at my powerful-yet-anonymous readers—I can track your domain names, sillies—I'm compiling a list of agents that would be a good fit for Cancer Is the New Black. If people have suggestions and/or you're an editor or agent, holla. Facebook is best.
Meanwhile, don't forget to buy the Heeb magazine book Sex, Drugs and Gefilte Fish. Though I haven't bought it yet—seems weird that I should pay for my own book—it comes highly recommended by Mom and Dad. Dad probably went straight to the Sex part and not my essay; Mom probably went straight to my essay and then Drugs, maybe? I don't know, do they have a red wine or Grey Goose straight up chapter? I've sold about 100 copies so far via the Yenta Network. Help a sister out so I can prove that this bitch can move books!
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Tuesday, October 20, 2009
If I Had a Fan, It'd Be Doo-Doo Brown
I've been mired in a vortex of self-pity, depression, anxiety and just a little bit of anger. Fear that this cocktail won't work. Not totally irrational because, hellooo, I did everything and more first go-round and was "in remission" for, let's see, 18 months. (Remission begins after the most major surgery. In my case, the mastectomy was Feb. 15, 2007.)
Can you imagine if I hadn't had the mastectomy or chemo? I'd be fucking dead. Dead. Literally. How many people have to stare death in the face not one, but two times—or three times if you count my near-death accident on I-95 in May of this year.
Which brings me to Sunday. I've had a pretty unlucky October. Aside from the PET scan coming up clean—thank you thank you thank you whom/whatever is out there—it's been just shitty. I think the Walgreen's on 6th and Jefferson is like the Bermuda Triangle of karmic wrong-ness for me. This is the Walgreen's where beg-for-money-yet-luscious-weaved Scary Tranny hangs out. And where I go nearly every day for my Snapples.
Now, I'm avoiding that place like the Swine Flu. The week they found my enlarged lymph nodes, I backed into this gargantuan SUV in that parking lot. So, I'd chilled all weekend—malaise, pain, exhaustion—but still managed to get to the gym all seven days. Sunday, went to Walgreen's for pre-gym Snapple. As I'm walking out to my car—I kid you not—there's a cop car facing me and I hear from its megaphone:
"Stephanie Green, you've got a little problem." W.T.F. I was already in such a resigned, defeated, deflated state of mind that I just sighed and walked over to his car. I knew my driver's license had been suspended because I forgot to pay the ticket for the near-death collision. (Escaping death costs you about $180 in Palm Beach County. You can't really buy anything big on Worth Ave. for that amount, so it could be worse.)
The cop actually radios for backup. Let me explain to you where this Walgreen's is. The street I live on is perpendicular to 6th street, which becomes a little sketchy as you head East. Walgreen's is around the corner from where Ben and Laura live and near one of the most notorious drug-dealing and crime-infested areas on the beach. Crack deals, robberies, crazy homeless shamans with feces all over their togas and shit. The sight of blue lights is an almost every day experience; we often watch the action from B & L's window. My point is that the Pigs have a lot to worry about in this hood. But no. Instead of patrolling the nabe, this cop is PARKED IN THE WALGREEN'S LOT RANDOMLY RUNNING LICENSE PLATES. Bing! I win.
So I'm standing there with my Walgreen's shit and he's pulling up all the stuff and telling me my license is suspended in both Miami and Dade. (I didn't know about Dade.) I didn't pull the Cancer card on purpose. I mean, I'd been bawling off and on all weekend. Everywhere. In public, private, you name it. Why should the Walgreen's parking lot be any different? I started crying.
"Look," deep, sobbing gulp, "I know I should've taken care of this but I've," gulp, "been rediagnosed," gulp, sob, "with Cancer this month. And I just haven't been able to take care of this."
The cop, youngish, not bad looking but kinda red-necky, softened.
"Look, I'm not going to take you to jail." I knew that. I have good luck with cops while Brother has exceedingly bad luck. Once I lose my looks—which I'm expecting to commence in the next year—I suppose I'll have to become a law-abiding citizen.
I just had to take another half a Klonopin, as I felt the rapid pulse that precipitates a lovely anxiety attack. (I'm up to 13 pills a day including Lamictal and Pristiq, but not including however many Benzos I pop. Small dosages that get me through the days and help me sleep at night.]
So back to Walgreen's. The officer walks me over to my car, where I'm pretty much just sitting and crying, and tells me to call a place called The Ticket Clinic, where I can hire people to take care of this for me.
"Okay, but my license . . . how do I, uh, get home since, you know, it's suspended?"
"I'm going to pull out while your still parked and as far as I know you were sitting here parked when I left."
Cool. Only mildly shaken up, I proceed to the gym. I'm *so* used to things like this that they barely phase me. Moreover, I'm in severe self-destructive mode right now. I don't have much fight left in me; had I been taken to jail, I wouldn't have resisted. I didn't even call dad, attorney extraordinaire. I just don't care.
The shit just keeps hitting the fan, but I'm half-heartedly weathering it, hoping that all this bad luck will lead to something good. Pessimistic optimist? If 'sigh' were an adjective, that would aptly describe my state of mind.
I'm terrified. I'm guilty. I'm in pain—the joints and bones from Xeloda. And I'm unsure of the future, which is a very scary prop for a type-A like me. I'm fearful of making plans because as soon as I decided to leave Miami—I even gave notice I was leaving to the condo's attys—and head back up to New York, I had the recurrence.
The scariest part? Well, every day until Nov. 5th when I go for my check up. Because this time, I can physically gague whether the cocktail is working by feeling the leader of the enlarged nodes on my neck. I'm trying not to obsessively feel, but I still touch it a few times a day at least. Went to Chad (acupuncturist) yesterday for a tune up and pain relief, and he said he thought it was the same maybe even a little smaller. It's all I can do to not get out the tape measure like a complete fucking psycho to see if it's below 1.8 cm.
In short, I have to admit, I'm really, really scared. Depressed about everything, though mostly the fact that no matter what happens I cannot edit my manuscript, and just so resigned to life as a Cancer Patient.
Even more frightening is the prospect of having to remove my ovaries while I've still got Cancer. Shit, I'd take 'em out tomorrow if I could, but Doc Schwartz won't let me. I feel like gutting my own body and my brain. I feel like giving up and moving back into my parents' house indefinitely. I feel like I did at 28, when American Media sued me for writing Dishalicious and there was no light at the end of the tunnel. (Remember, before I went and got myself Cancer, I was that girl who wrote that roman a clef that was allegedly about Bonnie Fuller and working at Star magazine.) After two years of agenting and legal battles—which I won, totally screwed AMI—I actually burned the manuscript in my kitchen sink on the Upper East Side.
Hence, my hesitation about getting Cancer Is the New Black out to agents—potential, profound failure on top of Cancer. Can't do it alone this time. I decided to try to hire a trusted writer and friend to read the manu and edit it, which Dr. Laura thought was a good idea. If this writer has time to do it, then I'm golden. I just am too close to the work, and now, more than ever, do not feel like reading about the past two years.
Truth is, right now, I'd rather be someone else. And somewhere else. Which is why I'm seriously thinking of booking a plane ticket somewhere next week. I'd like L.A. but biz class tix just so pricey out there. But a face-to-face with Dr. Laura and seeing all my West Coast friends would be a nice break.
Oh, well, ta, I'm off to the gym. I'm reading one of the Gossip Girl books on the eliptical—such a great break from my own brain.
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Sunday, October 18, 2009
Live Strong? Duh.
With regards to me and my current Cancer situ, the most overused word being lobbed at me is strong. It's not a bad word, don't get me wrong. It's just one of those words people use in times of crises. There are pat phrases people employ—myself included—in tragic times. I mean, what are people going to say?
But the one I get almost daily is: "God, you're so strong. How can you be so strong?" It's not a choice I made. It's a character trait, in my opinion. Weak people don't last. They certainly don't succeed or educate or entertain or write stuff that seems to make their readers think they're strong. I've been thinking about this word because writers think about words. Words aren't throwaways to us. Words are our building blocks. Words are our weapons. But I want to examine this word, for my own edification really.
So, Merriam-Webster:
Strong:
1 : having or marked by great physical power.
Not at the moment—the Xeloda is causing my bones, joints and muscles to ache intensly. I was one of the slackers in yoga this week. My Ashtanga teacher yesterday: "Are you okay? I noticed that you seem to be having trouble even doing chaturanga, and I know you're strong, what's going on?"
2 : having moral or intellectual power. I won't take issue with this one. Morality is one of the character traits each and every person I take into my life must possess. And, yes, I'm smart. I have never had any insecurity in the intelligence department. I do have some dumb friends though; they can't help it.
3 : having great resources (as of wealth or talent)
Very interesting that this falls under the "strong" word, no? I always thought of this as luck. But if it's strength, I'll take it. I suppose it takes strength to ask for help from those resources you have, and I did ask for help. Plenty of it. That's how I got my doctors, wig, care, private hospital rooms, drugs etc.
4 : of a specified number
Uh, okay, I have an army of 420. Actually, I have an army of Heebs and token MOTs from here to Cali to New York.
5 a : striking or superior of its kind
Strong willed? Strong character?
b : effective or efficient especially in a specified direction
I'm trying to work on this one re my book. I'm trying, but if I have one area of "strong" weakness, it's this one.
Everyone—even fellow Breast Cancer-ers—asks me how I stay so strong. I can't answer them because that's like asking me how my eyes stay brown or how old I am. I am who I am. Strength isn't a choice, I was born strong. Only the strong survive right?
This doesn't mean strong people are strong all the time. I'm okay being wheeled into a PET scan or surgery, but I cry like a baby at really bad romantic comedies and when I'm alone at night, watching TV with Wally and eating take-out or thrown-together salads. I cry. I feel sorry for myself. Not really for the Cancer, but because the Cancer has made even slimmer the possibilities of leading a happy life. I wasn't optimistic about men before Cancer and now? Well, you don't get the big white wedding or Mr. Right or the Oscar dress and four carats when you're 34, single, living with Cancer, likely for life. Moreover ladies, let's face it, boys our age don't want strong women. They're scared of us. Strong women like me? We eviscerate boys our age because most of them are weak. (Can you imagine a man having his balls and dick chopped off and remaining strong and manly? I don't fucking think so.)
Here's what I think—single people have to be strong. We don't have husbands or wives or lovers to fold into. We don't have someone waiting for us at home to carry us to bed or run errands for us. We don't have help. We don't have an 'other-half' to share responsibility. Yeah, yeah, yeah, I've heard the stories—"marriage is hard!" Whatever. Try being single. At least you have someone to help you do dishes and walk the dog. We are strong by default. Trust me, it would be nice not to have to be strong once in a while. It'd be nice to be able to cry on a lover's shoulder instead of in Wally's snuff. (Though nothing smells better than doggy snuff.)
I'm strong because I was born strong. I come from strong stock. I have strong resources. Strong family, strong friends, strong doctors, advisors, connections and therefore I am strong. I am strong thanks not only to myself but to the hordes of strong people I'm surrounded by—my parents, their friends, relatives and my best friend. Can you imagine how hard it is for a mother to watch her daughter go through this? A brother who lives thousands of miles away? A father who knows that this killer gene his daughter has was passed on from him? A best friend who for the first time in our lives is not just a car ride away? They keep me strong, but it's also okay for them to cry around me and vice-versa.
When I was rediagnosed, I wasn't strong. I collapsed emotionally and folded into myself. I weeped openly despite three Klonopins. It's okay not to be strong when you're watching your mom, her best friend and even your doctor go into shock.
But bad news, bad luck, shitty fucking circumstances—they don't make you strong or weak. They make you shore up your reserves unconsciously. I don't know how to be weak. Sometimes I try—crawl in bed and crawl with Wally. Then I get bored and go to the gym. Even though I can't even do fucking chaturanga without pain.
These are just a few of the people over the years who've made me who I am—strong and lucky.






Below is dad's mother Lilian, who I got the BRCA gene from. She died of Ovarian Ca when I was very young.






















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Thursday, October 15, 2009
I woke up with a blank mind and unfortunately, Wally shit in the kitchen. I don't have too much on my mind at the moment aside from Cancer and career, my twinset Achilles. Started the Tykerb last night. So now it's 11 Cancer pills a day. Five (!) Tykerb in the a.m. on an empty tummy; three Xeloda twice a day with food. Adding in my mental health meds, that's a lucky 13 pills a day! So far, so good on the side-effects.
I must say that the frightening thing about this 'cocktail' is that I myself will know whether it's working by feeling the protruding node on my neck. If it's working, the node will shrink. If it's not, it won't. As you can imagine I'm practically sitting on my hands to prevent me from feeling the fucker several times a day. I've also stopped wearing my every day necklaces—they get in the way when I do decide to obsessively feel the lump. I'm also trying to avoid carrying heavy bags on the right side. So I need a new light-weight, black, every day bag. Until this shrinks at least.
Some—well, most of you—probably are unaware that, yes, I do have some regular freelance gigs. I've been writing the Miami fashion, beauty, events and luxury goods pieces for Juli B practically since Juli started it, and have been impressed by their growth. Especially since they've become affiliated with a global corporation but have retained editorial control. Meaning, the writing style hasn't changed. And contributors like me still get to be creative. (This month's fashion + beauty picks.)
Sometimes it's difficult for me to select my fashion picks, as I'm not a trendy shopper, which you know, but as a fashion writer It's my job to keep on top of the trends. One of which this season is the motorcycle jacket, which I'm completely on board with if it's done the right way.
I was perusing the usual sites—Bergdorf, Neiman's, Barneys etc. when I found the Holy Grail of biker jackets.
I'm completely, utterly obsessed with this one from Alexander McQueen:
Ob-fucking-sessed.
Luckily, at nearly $6,000, it's not an obsession I can even entertain the idea of indulging in. But behold the goodness of this work of art by looking at all the photos at Bergdorf. And if you want to receive my two monthly columns directly from Juli B to your inbox—plus editions in other cities—sign up here.
Aside from this blog, Juli is the only place where I can really exercise my high-fashion muscles. When I'm not shopping with mom, that is.
On a nipple note, I've got the second tattooing of the color Oct. 26. So even though my insides are still a mess, I'll be whole on the outside. A whole helluva lot of good that's doing me though. The men aren't exactly lining up and I almost feel sorry for my mom and her yenta friends who actually still hold out hopes—and vocalize them quite fucking frequently—that I'm going to meet a man and marry.
No pity party here people, just my usual, fact-based realism: A 34 y/o single woman with Breast Cancer—probably lifelong—, bad genes and an inability and lack of desire to procreate. (Did I mention that now that this fucking Cancer's recurred that removing my ovaries is even more time-sensitive?) Like, I could potentially have the surgery next year as a 35th birthday present to myself. Imagine the retail therapy that would entail! Yippeeee!
Okay, so it's October 15th. Which of my readers aside from Kim (and I believe Donna) has scheduled their mammograms?
PS Get this shit—I just called my hospital to ask if there was any sort of "free mammogram" day; there's not. But there is a SPA DAY for all of us CPs treated at Sinai! Woot woot.
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Wednesday, October 14, 2009
Heeb book
Finally, I'm a legitimately published author! Buy it—or don't, I've already earned my $50!—on Amazon.
Sex, Drugs & Gefilte Fish, a Heeb magazine compilation. There are scores of stories by better-known authors, but what beats My Chemical Romance with Cancer?
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Tuesday, October 13, 2009
Of Bidets and (Bull)Shit
Looks like we're back to square one on this blog, huh? No-holds-barred Cancer talk. I didn't necessarily want to be back here, but if this is my life right now, this is what you get.
Xeloda—oral chemo that I started on Saturday. Six pills a day—three in a.m., three in p.m., with food. Major side-effect dia-ree-ree.
"Oh, that's fine," I told Schwartz. "Frankly, I could do with a little help in that department." Oh, real smart Stephanie—the woman who believes in even the tiniest of jinxy statements.
So I didn't re-up my stash of Miralax and began the Xeloda.
Now—Jesus, I can't believe I'm talking about my BMs for the world to read, but fuck it—it's AWARENESS month, right? So, I'll make you aware of the fact that this germaphobe hasn't taken a dump in a public restroom in more than a decade. Yep. And if I've absolutely had to, well, thankfully I've got killer quads. Moreover, I've not sat on a public toilet seat even with covers in probably fifteen years. Therefore, I get my squats in each day.
But now, I'm going to have to become the George Costanza of Miami Beach. Remember this Seinfeld exchange?
"JERRY: Anywhere in the city?
GEORGE: Anywhere in the city - I'll tell you the best public toilet.
JERRY: Okay.. Fifty-fourth and Sixth?
GEORGE: Sperry Rand Building. 14th floor, Morgan Apparel. Mention my name - she'll give you the key.
JERRY: Alright.. Sixty-fifth and Tenth.
GEORGE: (Scoffs) ARe you kidding? Lincoln Center. Alice Tully Hall, the Met. Magnificent facilities."
So far, I've avoided the use of public facilities. I've kept my days close to home—gym, Whole Foods etc. However, there's the bidet issue. Most luxury apts in Miami have bidets. Including mine. Which stores magazines.
You see, I have some deep-rooted psychological issues with bidets. Roxy, mom's long-deceased, good-for-nothing-but-jewelry-and-fashion mother, had a bidet in her bathroom. Brother and I simply didn't get it. (She died when I was only 17 and Bro was 13.)
We dubbed it "the tushy cleaner," and were loathe to imagine our Roxy, with her flaming read hair, stillettos, diamonds and stiff Upper East Side demeanor, on the tushy cleaner. So when I moved into my first apartment in Miami and noticed the bidet, I most likely had a visceral, subconscious reaction along the lines of: "Oh, a tushy cleaner. Okay." Roxy! And promptly put my bathroom reading materials in the bowl.
Same thing in this apartment, but not necessarily something I gave a shit (no pun) about. I have a hand-held shower head in the shower and the Whirlpool, and I'm not a baby, so I think I have that hole covered. Then, one of the first times Mr. and Mrs. X came over, they reacted towards the bidet as I react when I go into Bergdorf's.
"Oh my God, you have a bidet! Oh, Mr. X, I miss our bidet." I think they were drooling over my bidet for a good five minutes.
"Ugh, the tushy cleaner? Take it. Fucking gross."
Cut to yesterday. I was on the crapper more than usual.
Texted Mrs. X: "Looks like I may have to start using the tushy cleaner."
"You will love."
"Doubtful."
So I turned it on for the first time, and, for the first time realized that it's just a normal faucet.
"I don't get it," I texted the tushy cleaner expert, "Roxy's had a spout that just shot up from the bowl." Which, kind of is what you want it to do, no?
Here are the instructions I receive: "Push your booty back; It will go in the right direction."
I ran into the bathroom and piled the Vanity Fairs and Vogues back into that motherfucker. (PS, check out Oribe's 'do on Penelope Cruz on this month's VF cover. I have the same bangs as my girl crush!)
I'm waiting on the Tykerb, which has to be shipped directly from a "specialty pharmacy" called Caremark. Was on the phone with the insurance gal at the onco's office for an hour-plus yesterday trying to secure this drug, which the FDA is apparently regulating strictly. Only 15 "specialty pharms" in the U.S. can sell this shit.
What's the only thing up my ass right now? The fact that Humana is only covering 25 percent of the oral meds—my out of pocket cost will be $1,800 a month. Yep. Two months and I could've nearly bought a Birkin. Chemo—100 percent covered in hospital. Twenty-five percent out of hospital. I'm sick over these numbers. Sick. That's more than my (foreclosure-reduced) rent per month.
You can put a price on life these days when you're sick. And if you can't pay the costs for your own life—guess what? You lose it. You die.
Someone, tell me how the Obama Care plan will help these costs, for people like me and other less fortunate people. Yes, I can pay the fucking money okay? Regardless, that doesn't make it right. I swear, if this fucking Cancer doesn't go away, I'm going to cause the 'rents to be knocked down to a lower tax bracket. That, I will not accept. Chemo but no Bergdorf's for mom? Unacceptable. Cancer-free but traveling in steerage? I don't fucking think so.
Which brings me to this: My readership is approaching 100,000 people. I mean, if this were a book that sold 100,000 copies, that's a fairly respectable number, no?
And the more I think about it, the more inclined I am to just pitch my memoir as is—a compilation of my blog over the past couple of years, with less narrative woven in than I would've hoped. Because now if I ever make some real money via writing, it's going straight back into mom and dads' pockets.
Oh, but I'm a legitimately published author this month, via Heeb mag's Sex, Drugs and Gefilte Fish. Member? That's the one I got paid $50 for. Yeah.
That's all for now. I've got to straighten out the meds and I haven't showered since Sunday. I'm one hot Cancer patient right now. And I'm seriously, seriously upset about the cost of these meds. They *may* save my life, but they *will* make my quality of life suffer.
Yes, this is Cancer from the perspective of one of the lucky ones—I get it. I can only offer you my own experiences. I don't pretend to know anything about how less-fortunate people can deal with Cancer. I welcome comments and stories. I mourn the people who've died because money comes before health in this country. But don't think that just because you're blessed with financial resources that Cancer costs don't effect you. No matter how much money you have, $1,800/mo for two meds is a lot of fucking money.
This post has depressed me. I can't believe I'm back here. I can't believe that with an eight percent chance of recurrence, I fell into that eight-fucking-percent less than six months after stopping Herceptin. If happiness could be bought even for a day, I'd take that $1,800 and buy it. Cause I'm not happy. Not happy at all. In fact right now instead of working on two assignments I have due, going to the pharmacy, the gym, acupuncture etc., I want to lay in bed with Wally and cry. And let me tell you, PMS on top of Chemo side-effects? Not a walk in the park.
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Stephanie Green
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11:42 AM
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Sunday, October 11, 2009
Obama, Your Mama
I knew there was a reason Obama rubbed me the wrong way from the beginning.
I've been a blindly Democratic voter my whole life simply by virtue of the way I was raised and because I'm a Jew. However, now I'm a Cancer patient. A Cancer patient ignorant about the whole Obama socialized health care issue because, well, I have good insurance, and let's face it people, I've got way too many issues to be vigilant about at the moment.
However, after that OB's comment about my bro's good friend Michelle Haimoff's post about me, and me posting it on Facebook like mad, I think I've just become Republican. My shrink, Dr. Ilan Melnick—shrink and friend, that is—just called me on my cell after reading the rant and explained, in plain English, the premise of Obama Care from a specialized doctor's perspective. My primary care physician is a cardiologist and family friend. He is my GP. You couldn't pay me to go to some old internist that is merely in my network and neighborhood. Thank God for that.
I'm very, very, very angry, people. SO angry that my malignant lymph node seems to be throbbing. So angry that I forwent yoga to rant for the past two hours.
Below I'm posting an email that Dr. Daryl Eber, Dana's brother and my bestest straight guy friend, sent me. Daryl is the expert, has done the research and is one of the biggest brainiacs I know. So, may I present: "My Thoughts on Health Care" by Dr. Daryl Eber.
Many people have asked for my thoughts on health care reform. So, here is a quick synopsis of one issue I feel strongly about. No surprise, I am disgusted that the issue of tort reform has not been more widely addressed.
Summary of my rant:
1. Defensive Medicine is the practice of diagnostic or therapeutic measures conducted primarily not to ensure the health of the patient, but as a safeguard against possible malpractice liability.1
2. Tort Reform refers to proposed changes in the civil justice system that would reduce tort litigation and/or damages. 2
3. Defensive Medicine costs nationally are estimated to be $65 BILLION to $200 BILLION per year. 3
4. The cost of Mr. Obama's Health Care overhaul is estimated to be around $100 BILLION per year. 3
5. The stranglehold the legal industry has over the Democratic party as they were their top single contributor in the 2008 cycle with over $47 MILLION donated.3
6. Widespread dissatisfaction of physicians regarding tort reform. Over 10,000 Physicians signed a tort reform petition that was hand-delivered to EVERY Senator on Capitol Hill and rumored to have been delivered to Mr. Obama in the oval office.4
My thoughts on tort teform:
Last Wednesday Mr. Obama told Congress and the American people, "I will not stand by while the special interests use the same old tactics to keep things exactly the way they are." He is in fact doing this with the trial lawyer lobby. The issue of tort reform, or legislation that would change the civil justice system to reduce unnecessary lawsuits and exorbitant monetary damages, clears the fog of partisan war. This is the best example demonstrating Mr. Obama's hypocrisy of "Change."
There are a handful of powerful trial lawyers and powerful politicians who have been very successful blocking tort reform amendments to the health care bill (H.R. 3200). Who was the largest contributor to the Democratic party in 2008? You guessed it, the legal industry with a whopping $47 MILLION donated in 2008 alone. Here's a charming quote from Howard Dean, "Here's why tort reform is not in the bill, when you go to pass a really enormous bill like that the more stuff you put in it the more enemies you make. And the reason that tort reform is not on the bill is because the people who wrote it did not want to take on the trial lawyers in addition to everyone else." During development of H.R. 3200, there were 11 amendments regarding tort reform. Democrats, on a party line vote, killed all of them. Senator Whitehouse (Rhode Island) came out in strong defense of the trial lobby to the various committee members in the House. Since 2005 this Senator has personally received $900,000 from the trial lobby, with some large donations coming from national tort powerhouses like Baron & Budd and Motley Rice.3 Senator Durbin (Illinois), $3.6 million in lawyer contributions, crushed Senator Baucaus' (Senate Finance Chair and leader of the Health Care Reform on Capitol Hill) attempts to include the Enzi-Baucus proposal for tort reform.3 It's comforting to know that the trial lawyers are the largest contributors to the Democratic party and most of the politicians who wrote H.R. 3200 are lawyers in the pockets of other lawyers.
I can hear you now, we appreciate your concern but Mr. Obama addressed some tort reform in his speech. Let's try to understand why he touched on this topic, only the second time publicly. The first time was at the annual AMA meeting in Chicago where he told thousands of physicians, "The only tort reform you'll see are more guidelines." You have to respect his courage for saying that in front of a room full of physicians, but don't forget he has a Secret Service detail. [LOL] Physicians were up in arms and have been loudly voicing their opinions ever since. Over 10,000 physicians signed the Sermo tort reform appeal which was hand delivered to EVERY Senator on Capitol Hill, and rumored to have been delivered to the Mr. Obama in the Oval Office.4 This is why you heard Mr. Obama say, "I have talked to enough doctors to know that defensive medicine MAY be contributing to unnecessary costs." Mr. Obama says this is no "Silver Bullet," but his plan is estimated to cost $100 BILLION per year and current estimates of defensive medicine are around $65 to $200 BILLION per year.3 I don't understand, "they may be contributing to unnecessary costs?" I'm no mathematician, but if you cut the costs of defensive medicine in half, it sure seems like a silver bullet. Tort reform is widely popular among voters with polls showing 70% to 80% of Americans believe there is excess litigation.3 Whether you are a Republican or Democrat, doesn't this meet the definition of a consensus? I believe these facts contribute to the general distrust of Mr. Obama's proposal. If Mr. Obama truly believes in real health reform, he needs to advocate the best "medicine" for our country and stand up to this powerful lobby and pass substantial tort reform. Let me see, "Financial Reform," "Health Care Reform," "Legal Reform" easy sell!
So, Mr. Obama suggested test projects. I'm not a huge Sarah Palin fan, but I'm pretty sure she tweeted that Texas and California passed successful medical liability reform years ago. Is the data not available? Were the tests too successful so more need to be performed? I'm a little concerned that Kathleen Sebelius, his secretary of health and human services, is in charge of these new test projects. Mrs. Sebelius only spent eight years as the head of the Kansas Trial Lawyers Association. No conflict of interest there.
So how do other doctors feel about this issue? Try asking one. I guarantee this is one of their top priorities regarding health care reform. DEFENSIVE MEDICINE IS REAL. As a Radiology resident I see extra, unnecessary studies on a daily basis. So far, the record is about $3,600 worth of unnecessary imaging studies in one hour. Research conducted and sponsored by the Massachusetts Medical Society in 2008, found that defensive medicine in the state of Massachusetts alone costs a minimum of $1.4 Billion annually. National costs put that number around $65 to $200 BILLION A YEAR (re-emphasizing that number for effect)!2 In South Florida, physicians live in unnecessary fear. We understand the gift and responsibility we undertake when we treat a patient, but everything we've worked so hard for and sacrificed so much for can be taken away overnight. All because of "Jackpot Justice." To avoid this nightmare scenario, it's easier to order extra tests "just to make sure," or "to defend ourselves in front a jury." This is wrong, wasteful and against our oath as physicians. Studies from opponents of tort reform try to demonstrate no financial impact of the "few" wasteful and illegitimate lawsuits, but we know the real data is not being captured. The data that is difficult to calculate because these so called "justified" tests can fall within a spectrum of treatment, but are unnecessary to patients' outcome. We have no doubt that curbing defensive medicine through LEGITIMATE tort reform will lead to substantial cost savings throughout the system.
Make no mistake, if tort reform is not part of the completed bill, we have all been duped by a political process that hasn't "Changed." Physicians understand this and will revolt. It is already starting. Please keep these thoughts in mind any time you discuss health care reform. Feel free to forward this email to anyone you want. I welcome debate on the issue.
Daryl Eber, M.D.
PGY 5, R4
Miami, FL
References
1. Wikipedia 2009. 1 August 2009 < http://en.wikipedia.org/wiki/
2. Wikipedia 2008. 1 December 2008 < http://en.wikipedia.org/wiki/
3. Strassel, Kimberley . " The President's Tort Two-Step " Wall Street Journal 11September 2009 <http://online.wsj.com/
4. Sermo 2009. 9 September 2009 <http://www.sermo.com>.
5. Hypocrites, Democratic. H.R. 3200 - America's Affordable Health Choices Act of 2009 1 August 2009 <http://www.opencongress.org/
XOXO Cancer Chick
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Stephanie Green
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7:33 PM
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Oh No She Dit-int
We need to take this bitch down, ladies. Read Michelle's blog GenFem in its entirety, but read this post about me first. And then read the comment from an OBGYN named Abby.
I haven't been this mad in a long, long, long time. I wonder how many of her patients have died from this doctor's ignorance and misinformation. Once again proof positive that good doctors can make or break you. Thank you, thank you, thank you to the good doctors out there.
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Stephanie Green
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6:45 PM
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Saturday, October 10, 2009
Serene is the word that best describes my state of mind at this moment, sitting on my couch with Wally, looking at the beautiful bay outside my window and catching up on The Real Housewives of Atlanta.
This could've been the longest week of my life. Such a horrible time warp. And how do I even convey the "luckiness" I feel, all around the board? Yes, Cancer changes you however you get it. But the second time was infinitely scarier than the first somehow. Yet thankfully, the treatment supposedly will be a (no jinx) cakewalk.
So if any day called for retail therapy, it was yesterday. Full-on-full-price retail therapy, which these Jews rarely engage in. Translation: Bal Harbour. As Bergdorf's as it gets in these parts.
The "it hasn't spread" Cancer present is perhaps the best yet—and we're talking practically two years of Cancer presents here people. I've been lusting after Hermès enamel bangles for some time now. But like I said, we hardly ever pay retail for jewelry. It's technically against our religion. But I went in and tried on several and only fell more in love. So Dad bought me a pair of Tory Burch gladiator sandals (on sale) at Saks (which are quite comfortable despite the fact that most people I know say her shoes are incredibly uncomfortable) and I took the car home while they stayed and shopped.
Dad and mom got home and surprised me with the cuff that I'd most j'adored: 
Loooove it. My first Hermès anything.
In another very odd footnote—I just returned from a neighborhood walk with the 'rents and ran into Tom and Hudson at Walgreen's. For you new readers, I was at Tom's apartment when I was first diagnosed. (See Heeb magazine's My Chemical Romance. And now I see him again just after I was re-diagnosed. Can you say psychic and freaky? He said he'd just been looking at my family photos on FB so he wasn't so shocked. But still, I'm telling you . . .
I think I need to go have my cards read in Cassadaga when I head up to Jax the next time.
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Stephanie Green
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2:36 PM
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